Following breast cancer they want me to take Aromatase Inhibitor along with a Biphosphonate Clondronate or Zolendronic so my question to everyone out there will these other biphosphonates result in similar pain? Took one tablet within 24hrs experienced labour pains & felt like Id been kicked by a horse in the back continued for 4 days, gradually wore off and I refused to take another Alendronic pill again. The first indication I had that something was amiss was in September 2009 I took three anti-sickness pills and had some very strange reactions. I decided to stop for a few months following my retirement as I was going travelling for 3 months. I was on it for 9+ years and it caused fractures in my sacrum and pelvis. Its 2.35am here in Kent & I am terrified about what 2moro will bring if I am forced to use AA. I still do not feel right and have added pain, although a bit better than it was. With this condition, your bones become thin and weak, and break easily. Never in my life have I read as many horror stories and am dumbfounded that medication like this is still being prescribed. I am worried about it as it seems to be getting worse. Want to take back controle before I find myself surrendering myself to more drugs. In April 2010 I went back to my gym routine, and within a few weeks the second jerking episode occurred. Is it possible to just stop taking the tablets? I cant believe the drug companies perscribe this medicine knowing what t doesTo patients,me included I have had the same side effects . I have also been taking Adcal tablets for years. Has anyone has this done ? After reading the patient information leaflet I was hesitant to take medication today. If it is common for headaches, dizzy spells and blackout reportsshouldnt this concern those that live alone, for both GP and patient? I also have arthritis in my thumbs. This prompted me to do more research into alendronic acid, but instead of looking up this generic term, I tried the brand name Fosamax. Below is everything you need to know about alendronic acid, commonly prescribed by doctors to treat bone conditions. Ive been prescribed alendronic acid now as although doing very well year later, my new doctor is concerned about my bone and muscle condition. Alendronic Acid Has Destroyed My Life (Everything About Alendronic Acid & When To Stop Taking It) by Reana Jean Cuevas You can only stop taking alendronic acid when your doctor says so. I hope you are ok. I am not in your age group Jane bit I can appreciate Yor feeling left out. I have been told I will have one in 2 years. This settled after a few days The hospital talking about infusions once a year but still waiting for a appointment. I was told I had osteoporosis in 2004 and was put on Fosamax for about 6 months after which I was switched to Actonel. they mask the crumbling bones within and only show the outer bone growth, I have decided I really dont want to take these any more but wonder if there are side effects. I shall be bringing these reviews to my GPs attention AND a refusal to even take the first dose! Bisphosphonates like alendronic acid and risedronic acid have been the subject of research on their effectiveness in treating osteoporosis. Hello Barbara but from the start have not felt well, stabbing pains dental probs,aching joints,My dentist referred me to a specialist to have 3 teeth removed,but i lost it in the chair so scared ! I urge you to Look into his work for yourselves. Im going to stop taking Alendronic acid. She decided to come off the Alendronic AcidShe really has gone downhill. I think I will investigate more about Boron like the reviewer above. My 76yr old mom has taken 7 AA tablets and it has cause her hip, leg and groin pain that has become quite severe. I am on prednisolone for polymyalgia. Alendronic acid is a bisphosphonate drug that prevents osteoclastic bone resorption which is used for the prevention and treatment of osteoporosis. The effects of alendronic acid may occur after 1 month of taking it. I had been suffering with a terrible burning tongue for eight months and I also had aching legs, this burning tongue I put down to the gallstones I have got. When I initially had a bone scan they said Id have another one after three years, Ive never had another one. Angry moment! Alendronic Acid 70 mg tablets is a tablet containing the active substance alendronic acid (commonly called alendronate) and belongs to a group of non-hormonal medicines called bisphosphonates. I have recently been prescribed AA and, after researching this drug for its possible side effects and reading your stories, I really do not want to take it! Hi. I dont know if this is due to alendronic acid or the letrozole I am taking for breast cancer. Doctor said it was a preemptive measure as my left hip was compromised! Withdrawal was so extreme that the longest I ever lasted off the drug was seven weeks, the worst of my life. She was a keen walker and is feeling very worried. Fast forward to 2008. Rare and serious effects such as femur fractures and jaw problems (osteonecrosis of the jaw) have been reported. I had a scan 6 months ago and have osteoporosis. Hi. Because of how I tend to react and my blood test results, I thought I would research the new meds first and Im now very pleased that I did. She doesnt have osteoporosis. Terms|Privacy, Research Forum for Enduring Sexual Dysfunction, https://info.mhra.gov.uk/drug-analysis-profiles/dap.html?drug=./UK_EXTERNAL/NONCOMBINED/UK_NON_000837661002.zip&agency=MHRA, https://www.druglawsuitsource.com/canada-fosamax-lawsuits-settled/. I feel so Ill, but after reading the comments regarding AA, Im not sure, if its the AA causing these problems, Im afraid to take my next one, on Thursday. Two or three times a week. I too, was prescribed this drug as, my poor mother had developed osteoporosis very badly. 6.5 Nature and contents of . Alendronic acid, ibandronic acid, risedronate sodium and zoledronic acid are bisphosphonates, licensed for treating osteoporosis. Im not really happy with the idea of another pill so asked what would happen if I didnt take them and she said I dont know ! I do wonder if all of this is as a result of being on Seroxat for so long. The food and drug agency should be aware of this severe health risk and compensation for reconstruction of dental work and monies for pain and suffering should be compensated. If you suddenly stop taking the drug, you might experience severe side effects, putting you at high risk of more bone fractures. Its harmful if you suddenly stop taking it without a proper assessment from your healthcare provider. My walking is less than a quarter of what it was, but that could be due to a herinated disc. Ive now been put on Risedronate and after just 24 hrs I ache all over and keep getting sharp pains everywhere , seriously thinking of stopping this as side effects are awful. Armed with more natural solutions which I have been taking anyway but paying more attention now. However Im convinced that its the AA tablet and am very scared to take another! My older sister, who had recently discovered she had osteoporosis, had a very bad fall, ironically as a result of a violent reaction to a prescription drug, and broke three vertebrae in her back. Are there any better options to AA which people have found?? Jan. There are dentists and oral surgeons in the US who will not treat people if they are on this drug. No other cause but the medicine . I hd bone density DXA scan scan in 2010 and was told i had Currently clinicians offer bisphosphonates to people with osteoporosis who are eligible for risk assessment and who have a high fracture risk. Im 59 and have a very physical job which involves a lot of walking, and I was told by a clinician when I first started treatment that it cant help the spine anyway! This settled after a few days and I thought no more about it. I have even had to report my concern and disappointment and lack of care by both my GP and Dentist. Hi. And how are we going to return to good health? But it probably has. Many thanks, Diagnosed with myasthenia gravis in January and prescribed boat load of tablets. If recommended to be taken twice a day, you should have it during lunchtime and dinnertime. Cut out all rubbish from your diet, anything processed or ultra-processed, with tiny treats to stop it being too depressing! Ulcers or erosions of your esophagus and gut, which include symptoms like severe heartburn, trouble and pain when swallowing, Bone death or damage on your jaw with symptoms like painful or swollen gums, loosening of teeth, numbness and heavy feeling in your jaw, and mouth sores, Unusual bone breaks in your hip and leg bones which is indicated by a dull, aching pain in your hips, groin, or thighs, Damage of bones in your inner ear with symptoms ear pain, ear discharge, or infection, Swelling in the eyes which have signs like blurred vision, painful or red eyes. Mayo Clinic Press. This is just too weird. But I just couldnt describe it as you have. From day one my tummy was not happy & after 8 weeks I suddenly became severely constipated (Literally overnight !!!) So I left the surgery with a prescription for alendronic acid and a promise I would have a scan after two years, not the usual three. Alendronic Acid prevents the loss of bone that occurs in women after they have been through the menopause and helps to rebuild bone. Im considering ringing the hospital myself to see if I can have one done. I also have severe oseaoarthritis in my hip and other joints are affected. I would like to take an alternative to alendronic acid wuth some exercises for the spine. Ohh my Goodness thank you so much for your post. I have been told to take kale with spinach and brocoli which is full of calcio blended with almond milk before breakfast and before going to bed. re the first strange vivid dreams has been my nearest experience. Food, mineral water, and other beverages may interrupt your body from absorbing the medicine. Store the tablet, oral solution, or oral effervescent form of alendronic acid as directed in its packaging. I decided to stop. It was so frightening my partner called for an ambulance and I was taken to the local hospital, where they hid me in a side room to let me sit and jerk in private. Alendronic Acid Has Destroyed My Life (Everything About Alendronic Acid & When To Stop Taking It) by Reana Jean Cuevas You can only stop taking alendronic acid when your doctor says so. The last two weeks I have felt terribly sick, not eaten much had terrible bloated stomach, one Sunday I felt so ill I had to do a 111 saw a medical person and was given a thorough test being told everthing was ok, I had put it all down to my gallbladder which it wasnt. Despite the doctor's assurances that it wasn't addictive, I became addicted. I stopped taking alendronic acid straight away and now wake every morning in the hope that there might be some improvement in my condition. 2023 The Heart & Brain. Learn more. Im 62, and fit until I came tumbling of my bicycle 2years ago and damaged my lumbar spine and muscles. http://www.ehealthme.com/cs/osteoporosis/drug+intolerance, http://www.ehealthme.com/cs/osteopenia/drug+intolerance, http://www.ehealthme.com/ds/fosamax/drug+intolerance. If youve taken alendronic acid for 2 years, your bones might still benefit from it for up to 5 years. In rare cases, alendronic acid may cause a serious allergic reaction ( anaphylaxis ). She was put on Alendronic acid as she had a fall broke her wrist and has had breast cancer. Everything was find. I hate taking meds and wonder if I should stop Alendronic acid. I will never take drugs like yours again. Drinking alcohol for about two standards per day may increase your risk of bone fractures. I would say) I was suddenly aware of my mouth being transformed into a state where I was unable to move my lips and then my jaw at all. My legs and bottoms of feet, are so painful. When I showed this to my GP, he said that is not correct and the book was wrong. Having read all the above I am going to see my doctor again about this drug. Alendronate may also be used for purposes not listed in this medication guide. Alendronic acid contains an active ingredient, alendronate sodium, a bisphosphonate. I am also diabetic 2 (no drugs diet only) coeliac (wheat and gluten free. AA scares me to death as 4 months after taking it I seem to have a continues dry sort throat ( weirded really) so I feel I dont want to take it anymore at my age anyway 75. Without the support of new bone tissues, your bones become more porous and fragile, making you prone to bone fractures. alendronic acid has destroyed my life Alendronic acid may put your pregnancy at risk. Thanks. They began to itch the next day, ( I took my 5th dose of medication) and they were slightly better but I called my doctor and got in To the office Friday. If you have osteoporosis, bone fractures commonly occur in your: Below are the most common factors that may put you at risk of developing osteoporosis: Youre also at a much higher risk of developing osteoporosis if you have health conditions like: Osteoporosis wont give you any symptoms, but you should visit your doctor if youre in doubt, especially if youre approaching menopausal age. I asked her how long wil it take for the fosamax to leave my body, and when will this pain stop. Alendronate (alendronic acid) Alendronate is an osteoporosis medication. I am a naturally upbeat person, but on Wednesdays when I take this drug my body feels so different, I dont like it. They are ok and work fine for first few years ! The side effects of this drug are well documented and you can see them at :- Do not lie down for at least 30 minutes after taking medicine. The optimal length of therapy remains unknown. So I have decided that it must be the alendronic acid and I have stopped taking them its making my life unbearable. I was put on Amitriptyline to help nerve pain. ). She had to wait months and eventually had the hip replacement. Like to leave a reply to louise bird Many thanks for all your comments re Alendronic Acid, these have been most helpful in my decision to take this drug. If I could try these first what would people recommend and . In addition, previous side effects were swellings and wealds all over, itching and bloatedness. I was told i had Oesteoporosis of the spine with high risk of a fracture. . I was prescribed alendronic acid 1x weekly. It starts after some seemingly minor jaw trauma, but jaw osteonecrosis can quickly decimate a jawbone. This is a vile drug dangerous and should be pulled from market to protect any future victims. The Royal Osteoporosis Society website is very detailed and useful, with info on exercise you should do more of it which must be weight bearing more so than just walking and promote balance. When and how you take alendronic acid can affect whether it will work or not. If you are taking this tablet once a week . Back to see the same neurologist whose diagnosis this time was that my muscles were very tight so I must be stressed, and if I wasnt already taking it, he would prescribe Seroxat! For all patients: Dental practitioners should ask about current or past use of She refused, but she agreed. I thought I was intelligent and assertive enough that it couldnt possibly happen to me a second time. Its been a nightmare for four weeks weeks. If you missed a dose, take it the following day and do not double take it to avoid overdosing. I had a complete hysterectomy 24 years ago but could not tolerate HRT therefore was susceptible to osteoporosis but I had slipped through the net according to my doctor and only got a dexa scan in August 2017. HI all I fractured my wrist in October had a dxa scan and was told I had osteoporosis. Ive been taking Alendronic Acid and Adcal for just over four years and a couple of times felt that my lower face looked slightly strange, nobody else could really tell and it didnt happen that often. I can't even eat an orange on an empty stomach as it hurts so much. Make sure the spinach is cooked to get rid of the oxylates which inhibit calcium absorbtion; so cook your spinach. I would demand one straight away. I felt pressurised to take it saying that I would suffer as I get older if I didnt take it but I am now wondering if it really does any good. the pain in my muscles and bones is unbearable, chills, last I had night sweat, my stomach was bloated, acid reflex and the headache along with my jaw ache wont go away. 25 yrs later Ive had a Dexa scan and was told my spine was crumbling and the reading was far worse than the worst possible. I was tested for gluten intolerance and was told I was gluten intolerant in 2011. Editorial Note: We want any accounts of adverse or interesting events on drugs or new uses for drugs from people on them or doctors, pharmacists or others trying to manage the effects of drugs. Your body naturally breaks down old bones and replaces them with new bone tissues to support your skeletal system throughout life. But after a yr i got a very bad back, ended up a right angle for 6 wks, now i have just pushed hard with a screwdriver and got such a pain in my side. I took them for two Sundays and my legs became painful,Dr said to continue and go back in 2weeks so I took one yesterday and today I feel breathless and giddy. I suffer with Reaumatoid Athritis, so put the pain down to this, plus the osteoporosis. This way, youll prevent any irritation in your throat or esophagus. My memory was a little fuzzy. The wierd thing is that none of my upper teeth seem to have been affected by it. I guess my mouth has changed after a long time and it has not fitted properly for a while. I took the tab yesterday &.the strange & heavy uneven rhythm actually woke me up last night. I read its the same Acid in cleaning products! I also went willingly and happily to the gym twice a week and did weekly pilates. It is usually administered as a pill and given to those with conditions that affect the bones like Paget's disease and osteoporosis. Alendronic acid | C4H13NO7P2 | CID 2088 - structure, chemical names, physical and chemical properties, classification, patents, literature, biological activities . I compared it with strontium ranelate, which was the drug my sister was taking, and the strontium appeared to have better results. It is strongly linked to a condition called bisphosphonate related osteo necrosis of the jaw if you require any dental treatment while you take it. My opinion is , go and see your GP for advise ! I was prescribed Alendronic acid because I had been diagnosed with osteopenia back in 2004. Been given Alendronic acid 10mg tablet which I have to take daily. The side effects are horrific. Alendronic acid is generally safe for long-term use and stays in your body. What is soil degradation in agriculture? This vitamin helps your bones absorb more calcium. I had also gone hypothyroid. Due to cutbacks now prescribed unnamed Alendronic and feel absolutely ghastly. Inhibiting osteoclast function, as bisphosphonates do, lessens bone resorption. From 2013 I was prescribed alendronic acid. She sent me to a specialist for a second opinion and he said take it. I had had a two year bone scan and been told that my bone density had increased, so as far as I was concerned, the drug was working and all was well in that particular area. But no issue with my teeth. june 2022. Since things improved I kept taking the medication. If I took slow shallow breaths the pain was bearable. how to prove negative lateral flow test. Hello Claire, I am 60 years old and very modern and active with and without my grandchildren. But I Need to get an updated DEXA to see how things have progressed. Firstly, the potential gastric problems, secondly osteonecrosis of the jaw, and thirdly the suggestion that the quality of the bone created by the drug is not as good as normal bone. Ive just read your post on this thread about Alendronic Acid & was hoping you might share your naturopathic bone protocol supplementation with me. I know they say dairy is a good source of calcium but we are not cows and cant absorbe or digest soemthing that is meant for young calves. Fast forward to 2019 stared getting pains from my knees traveled throughout my body into my head thought im going to die. Applies to alendronate: oral solution, oral tablet, oral tablet effervescent. Many thanks for all your information. I am 81 years of age. I have stop taking the drug and will see my GP this week to see what he recomends but after reading so many stories after taking this drug i am reluctant to conti ue taking it specially as i am taking other medications for high blood pressure, tyroid, high pressure of the eyes, high colesterol.etc. In the morning (Wednesday) I was not able to zip my jeans, brush my hair or other daily activities. Should there be a next time I will follow my own advice as I believe we all know our own bodies to a degree of course & I will follow my gut instinct!!! have been taking the drugs, with 3 years seen as a threshold point for an increased likelihood of adverse effects. I also read from what seems like reliable sources that oesophageal cancer rates go up by 40% and also causes atrial fibrillation in significant numbers .
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